Friday, June 15, 2007

It could have been me

Tonight I went out and celebrated my clean MRI with friends, Ryan, and Tessa. I am grateful with every cell of my body that the beast is at bay, and that I have been granted a reprieve. I've had far too many glasses of wine, eaten too much, and laughed deeply with my friends. I've kissed my daughter, held my husband tight. I have much to celebrate.

I came home tonight and read the following post on "the boards" from a young woman - beautiful, strong, positive - who is living with mets. I know it could have been me; I know that I could be in her shoes. I hate that this is what the disease does to people; I hate that anyone could possibly experience this level of grief.

I am eternally grateful that it's not me yet. I am resentful that it must be anyone. I know what breast cancer can do.

When you wonder if you should donate to "the cause," please remember this. Cancer isn't pink ribbons, it's this. It MUST be stopped.
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Tuesday night, I collapsed with a seizure at home. After several gruesome hours in emerg that I would not wish on a dog, I was diagnosed with nine massive tumours in my brain, which were causing quite a bit of swelling. They now have that under control for the moment and I am on a weekend pass home (hurray) on massive doses of drugs I cannot be bothered to pronounce - steroids, etc.Just to make it all more fun, my eight year old saw the whole thing. He is OK. I had this strange presentiment and luckily called a neighbour over who comforted him. My six year old heard my tortured breathing and is scared of me. Can someone please explain why this monster has to take everything away from me? I so wanted to protect them from this disgusting disease.Nancy, thank you for posting pictures of your head after whole brain radiation which I start on Monday. This site means so much because I knew exactly what my options were even as I lay in emerg. Bless you Nancy for your dignity and your courage and your humour in telling your story. You have no idea what it has meant to me over the last few days to have some idea what is ahead of me.I am remarkably fine considering that my brain looks like a train wreck on an CT. I have a perfectly normal neurological testing now. I seem to function fine. I was dragging my leg and that has gone away entirely.Victory? Well, I did have mine. As I lay gasping for air in this horrible seizure, I was, gruesomely, conscious. I could hear my own horrible breathing growing more and more infrequent. The only time I have ever heard someone breathe like that is when my grandmother died. I thought that was it for me. I have never wanted air so much. I could feel my husband's tears dripping down my face, and I chose to exhale and tell him that I loved him. I chose love over breath itself. Do the same if you have to. Be strong. You have all been so good to me over the last few months.

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Do you hate cancer as much as I do? Do something about it. Race for the Cure is tomorrow - join, donate, SOMETHING. You can donate to my 3-Day website using the link on the right. Do something. NOBODY should have to endure this. Nobody.

I HATE CANCER. This isn't a ploy, this isn't a scam, this is just the way it is. And I hate it.

It could have been me. I have been granted a reprieve, but it could have been me.

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