Monday, April 30, 2007

Home from Hawaii










Aloha!

The trip was fabulous. The time with family was wonderful, the weather was spectacular, the scenery was delightful and the ocean was fabulous. We all have tan lines from our swimsuits and smiles on our faces!

More to follow, this note just to let you know we're back. Now we're in the mad rush of trying to get caught up with things and get resettled into regular life, but when it slows down I'll update more.

Monday, April 16, 2007

A Message from The Talent

I am home from San Francisco, and I sincerely wish that I had several hours to write a blog entry because there are so many things I'd like to update on the blog. Many, many stories grew from my trip to film an internet commercial for Genentech, and I hope to have a chance to share some of them down the road.

A few updates:
- I had a MUGA last Tuesday, and believe it or not my heart function actually INCREASED from the MUGA two months earlier, despite my concerns. The tech ran the old scan and the new scan twice (she went back to the old films to rework the data), and she was amazed to find the same data each time. I'll take it! My heart is functioning well; no worries, and I continue to take Herceptin.

- I've reduced my thyroid meds and I'm hoping for a bump in energy as a result. I think maybe I feel a bit more rested now....?

- While in San Fran, I swam several gentle lengths of the pool, breast-stroke style. It didn't hurt! This is the best sign of all of my improved range of motion and strength. I also ran 30 minutes on the treadmill, plus warmup and cooldown, and my running break seems to have helped - my back didn't hurt at all. So, I'm back in the running game!

- My 3-Day team stands at 25 people and $25,000. I am immensely proud of this fact. We have only just begun!

- Shep's injury is healing, but not without bumps in the road. He has been to the vet every day - including Sunday - for the past six days because his wound is weeping and, frankly, disgusting. (Sigh.) I am going to have to take him in again tomorrow and we are now considering boarding him at the vet where his bandages can be changed more regularly. This will break his sweet little heart and I hate the idea but something must be done!

And then there's San Fran. Five days away from Tessa is the most I've taken since she was born, and it was a little lonely to be apart from her, but still, freeing and wonderful. I am eternally grateful to my mom & dad for watching her on Thursday and Friday, for Ryan for being his usual great dad self on the weekend without me, and to Jenny for watching Tessa extra today while Ryan worked and before I got home.

Highlights of San Fran:
- Nancy. Nancy is another Herceptin Patient Ambassador like myself, and she and I got a chance to spend a good deal of time together while we were in the city. Nancy is an amazingly articulate, beautiful, vibrant, intelligent woman with a twinkle in her eye. Like me, she is a breast cancer survivor. She has children my age, but this generational gap meant nothing - I wanted to soak up Nancy's wisdom and share in her friendship and humor. We ate (VERY well - we had several course dinners at wonderful resturants each night), laughed, and talked together, and the time just flew by. (The other ambassador, Ginny, is a lovely woman as well, but we didn't have as much time to get to know each other as we were on different filming schedules most of the time and she flew in later and left earlier.)

- Learning about the film industry. Though I was referred to - often to my face, but more often as if I wasn't even in the room - as "the talent" (as in "we need to get the talent over there" or "we'll need to round up the talent at 4:30" or "what do we want the talent to do next" or "get the talent into makeup and wardrobe as fast as possible") I was certainly not talented in this arena - it was purely amateur hour. I needed to learn to look away from the camera, to walk unnaturally close to things, to run slowly as if I was flying (not sure I ever got that one figured out), to look dreamy, etc. I was not the diva on the set, despite my starring role: the diva is the camera itself. The camera demands "More light!", "Too close!", "Faster!" in quick succession: the camera has a flurry of subjects bowing to it and appeasing it by catering to its every whim. I sometimes found it comical, but it was always interesting to me.

- I spent two hours in hair and makeup one day - plus touchups. It was exactly like what Tessa does when she plays dress-up, only Nick, the stylist, was paid to play. (I jest; what he did was hard work, and his work was excellent. To me, though, it was like playing!) Nick has done some famous work and showed me, using the hotel magazines as his example, some pictures of his work/clients - his name printed in the small type alongside their modeled faces on the glossy pages. He plucked my eyebrows - even though I had them waxed last week - and I'm here to tell you that I looked fabulous with his paint on my face. He is hysterical, and made me laugh more times than I could count.

- The highlight of the filming, for me, was also the most frustrating part. In addition to reading from a script (teleprompter), doing still photos, and scenes with no speaking parts (walking through a garden, drinking a coffee, etc.), I was required to do an "athletic" sequence. I had mentioned that I was into running and that I planned to run a marathon, and so they wanted to film me running. At the end of a twelve hour day, doing all kinds of strange things, running in slow motion, running quickly, leaping over 4 foot long mud-puddles, running into the sun, running away from the sun, running on the path, running through the trees, running fast, running slow, it was decided that I should run along the edge of the road and that the camera crew would go in the van alongside me to film me. We practiced a couple of times at a slow speed (a gentle jog) and I could see that the cameraman was getting frustrated with the shoot; it just wasn't going how he'd envisioned it. He decided we needed to speed it up. Twelve hours into filming I was a bit tired, but up for anything. We tried it a couple more times, sprinting through a park, and it wasn't quite right. One more time, one more time, one more time.... Well, on the last time, he wanted me to go hard. I put everything I could into it, I looked straight ahead, and I went as fast as I could go. It wasn't, apparently, fast enough, and the cameraman was yelling, "FASTER! GO FASTER!" in a voice that sounded more annoyed than encouraging. Since I was on film I couldn't yell back, but I was thinking ,"Hey, I AM going faster....gimme a break!" At that point, he growled out, "DIG DEEP!" and something in me snapped. It's a good thing that nobody could see the thought bubble above my head at that moment (rated R for profanity) but I dug as deep as I could go and, what-do-you-know, I finished with a burst of speed and a fierce (a combination of determination, frustration, resentment...) look on my face. The cameraman practically applauded, yelling, "YES! That's it! That's FIERCE!" Though still annoyed at him for asking me to go way above and beyond my abilities (I actually played out a scene in my head where I would rip off my shirt to show him all of my scars and yell, "Do you see this body? Do you see the hell I've been through? GIVE ME A BREAK!!!" - thankfully, good manners and common sense prevented me from doing such things, but it was quite the fantasy I had going!), I am actually grateful. He reminded me, unintentionally and for the camera's benefit, not my own, that when I think that my reserves are depleted, there are more. No matter how tough it gets, I can get a little tougher. "Dig deep" has all new meaning for me. I'm proud of that moment, and I hope it looks as spectacular on film as he promised me it would.

- The commercial will probably air in June on the Genentech website. Trust me, when it's available, I'll let you know! I've only seen a moment of myself running, and I'm not sure how it's all going to go together, or how long the finished result will be. I'm told that the stills will be made available to me online, and I'll share those too if they're not too embarassing.

And then...saving the best for last....Carolyn. Carolyn and I have been friends since I was 16; we met at Woodinville High School. I adore Carolyn; she is truly one of the finest people I have ever met, and I know how lucky I am to have her in my life. Time and distance mean nothing to us, and when we meet, everything falls away and it's like we've never been apart. Our friendship is one of my life's greatest gifts, and I'm so fortunate that she has stuck with me through all of these years.

Carolyn, who lives in the Bay area, came to meet me on Sunday and share in my free night at the Ritz. (I wish that I could report that the Ritz lost my luggage again this trip, but, sadly, that is not the case, and I do not forsee getting another free night there as a result.) We went to a drag show for brunch at the Starlight Lounge, and we went to America's longest running play, called Beach Blanket Babylon, in the evening. And the rest of the time? We talked and talkedandtalkedandtalkedandtalked. And then talked some more. We actually talked until 2am this morning - something I haven't done in AGES. (I can still hear my mom's voice when we were in high school, "Look, girls, it's getting late and you're keeping us up. Turn out the light and go to sleep! You can talk in the morning!")

We also ate. Oh my! We had the amazing fortune of having our room upgraded - we got to stay on the Club level at the Ritz. Now, the Ritz itself is an amazing hotel....lovely. I don't get to stay in 5 star hotels, so any room would have been great....but we got upgraded substantially. Our room was particularly lovely, with incredible views out to the water. Our floor had a special lobby with our own receptionists and a salon with all the free food and drink we could imagine. When we arrived, it was high tea; for dinner we ate their seafood appetizer buffet; then there was a dessert buffet. Wine flowed like water. In the morning, there was a breakfast buffet; before we left there was a lunch buffet. CRAZY! Every bit was delicious, and every bit was free with our room. We didn't need to go out to eat - we lived like queens (let's say princesses instead...sounds less dour or less drag-y!).

This morning we worked out -a fter all that food it felt REALLY good to do so. I ran on the treadmill, swam a bit, and we soaked in the hot tub.

I'm too tired to write more, and there is much more to say, anecdotes to tell, ruminations to share....but it is past time for sleeping. I hope more will follow in the days to come.

Kristina

Monday, April 09, 2007

Zoooom









Quick post as Tessa does some art and Ryan runs an errand...






Shep update:



He is going to be okay, but Shep was hit by a car on Saturday. It makes my stomach lurch just thinking about it, as Tessa and I witnessed the whole thing. Shep escaped past me when I opened the gate from the back to the front yard, and chased a neighbor's dog (his buddy) to play with him. Shep was so fast that that lady driving her SUV down the street didn't have a chance to stop, and she ran over his back foot. There was a significant amount of blood, and I could see all of the bones in Shep's foot....it really makes me tremble when I think of it. Our neighbor held Shep while Tessa and I raced back to the house for the car keys, jumped in the car (parked in the back alley garage) and zoomed to the front of the house to get him. Shep cried piteously, and I don't blame him, as the injury looked painful beyond belief. The neighbor helped us to load him up in the car, and we went the vet, which was mercifully open and only two blocks away. The vet met us with a team at the animal hospital, and whisked Shep away on a stretcher to assess and help. Only when Tessa and I were seated in the waiting room, Tessa hugging me and me returning that hug, did I break down and cry. What an awful thing to witness; what pain for Shep; what a traumatic experience for Shep, Tessa (she was so brave, dear girl) and I.






The long and the short is that Shep will be okay. His foot was "de-gloved" (that means what it sounds like - awful) and he broke only one toe - amazing! He is in a splint/cast and very subdued, but loving and sweet. He will heal. He had surgery to fix what was fixable, and only time will tell how it will heal and if the skin will close, or if it will be an open wound. Tomorrow we take him back for his check up.






Shep is a royal pain in the you-know-what, and I know I complain about him pulling on the leash, or shedding, or chasing other dogs to play, but man I love that dog. He is an absolutely wonderful companion, and he's part of our family. I am so grateful that things weren't worse.






Hawaii:



We leave next week. HURRAH! Dear Jenny is going to watch Shep (we'll pay her what we would have paid the kennel) so that Shep isn't with a bunch of dogs at the kennel, and he will be loved and cared for, so we are grateful. And I can't wait to plunk my derriere on a beach!






San Fran:



I leave on Thursday (returning Monday) and I'm looking forward to it - it's fun for me in my role as a stay-at-home-mom to play the role of a professional, and it's also fun to anticipate downtime on the airplane and in the hotel by myself! Best of all, at the end of the business part, I get to spend a day and a half with Carolyn. Lucky me!






Easter:
Was wonderful. We had our West Seattle friends over for brunch, and the kids went wild for the egg hunt. In the afternoon/evening, my parents, Mike, Krystal and their boys Caleb and Joshua came over for dinner (mom brought leg of lamb, and we made loads of veggies to go with it) and the kids played and the adults chatted. I felt fortunate to have such a wonderful day.






3-Day:
AMAZING. There are 23 on our team officially, and we've collectively raised almost $22,000. I can hardly believe how wonderful these women are, and how fortunate I am to have them in my life. We have a guy on the team now, too - hurrah for Kevin for being man enough to wear pink and hang with the ladies!






Race for the Cure/I am the Cure:
I have work to do, and I look forward to moving forward with it. The program is awesome and I'm glad to work with it.






Running:
My body is not liking running right now; my sciatic pain (this is what inspired the bone scan last December...horribly painful at times but not life threatening as it turns out!) is returning and my body is angry when I run. I'm trying to do some non-impact stuff right now instead. I STILL plan on that marathon; I just need to work up to it slower than I had been, so I'm scaling back.






Overall health:
Pretty good, all things considered. I am regaining range of motion, I'm adjusting to the bigger-than-I'd-like-boobs, and my tumor markers are consistantly low. My thyroid is off and so we're working on getting that back together so that I won't be so **** tired - I'm really feeling fatigued right now for reasons I can't otherwise explain. I'm having Femara issues, too....joint pain, and the fatigue may be part of that. BUT it's okay: I am generally healthy and I can live with the side effects as long as they don't kill me! I also have a MUGA tomorrow to see if the occassional lightheadedness that I've been feeling, along with some other random side effects, are heart related (Herceptin) or maybe something else. I suspect that the MUGA will be fine...fingers crossed! I continue to take Herceptin.


In the Easter picture with some girlfriends I can't believe how 5 extra pounds shows on me!!!! I'm working on losing it. I hit "Lifetime" for Weight Watchers on May 25 and certainly by my 1 year anniversary of hitting lifetime I plan to have lost that. Harumph! I'm supposed to be in a bikini in less than two weeks....!



There is more to post but that is all I have energy for tonight. Love to all!
Kristina

Tuesday, March 27, 2007

Some pictures






Time has wings

The days zoom by faster than I ever could imagine....where on earth does all the time go? Right now my house is a mess and I'm behind on laundry and I didn't even cook dinner tonight, and yet I was busy every second of the day. Yikes!

(The washing machine is running now; Tessa's beloved "Crockie" the stuffed crocodile from Orlando suffered a fall into a puddle and that got me moving. And yes, we know that if Ryan got it in Orlando, it must be a 'gator, but Tessa loves crocs right now, so a croc it is.)

And what am I doing with the 24 hours that I am allotted in a day, the same as everyone else? Well, lots of things:

- Working out! I am determined to be beach ready by Hawaii, and now that I'm not in surgery mode, I'm also determined to take good care of my health. I heard another survivor refer to exercise as her "treatment after treatment" and that really struck a chord with me. Regular exercise has been shown to reduce recurrence by up to 50%, which is FAR more effective than chemo. I never, ever would have skipped a chemo because I needed to do laundry or sweep, so I'm keeping that perspective now. Of course, chemo lasted months, and exercise lasts a lifetime, but I'm trying to keep a good attitude about it. Last week I worked out 5 times, running a total of 13 miles, and tihs week I plan to do it again (I worked out yesterday and today with plans to do it again tomorrow and Thursday). I'm able to run 3 miles in about 29 minutes, which isn't exactly a land-speed record, but when I consider how much my body has been abused lately (surgery is not kind) I'm pretty proud of it. The marathon - October - is calling and my work is set out for me.

- Physical therapy. I'm trying for twice a week right now, to make sure that I regain lost mobility. I've made huge advances since my surgery, but I'm nowhere near "normal" and I want to be better than average or normal.

- Team Warrior Women. As a team captain, I'm taking my job pretty seriously, and I have been kept busy responding to emails and communicating information to the team. I can't take much credit for it, but I am DELIGHTED to report that we have 20 official members - double last year's size! - and so far my team members have raised over $16,000. WOW! These ladies are incredible. This makes the hour or so per day that I've spent organizing things seem very, very worthwhile. We have a half a dozen survivors on the team already, and I'm inspired by them more than I can say.

- Genentech. I'm preparing for two events right now: another trip to San Fran in mid-April to film a video for the web, and a speaking engagement in Seattle on May 5.

- Komen for the Cure. I'm back into doing volunteer work, and getting ready to roll out the I am the Cure program at this year's Race for the Cure. It's exciting - but it's about to take up lots of my time.

- Co-op & swimming lessons. Tessa and I spend one day a week at co-op with her buddies Zoe and Jessie; the three girls also take swimming lessons once a week on "my" day. It's a blast to be with them, and they're good friends who play well together, but it's a very busy day. I am also co-op chair...a position I never should have taken on because I'm too busy.

- Back on Weight Watchers. A few pounds crept back on when I wasn't paying attention, and they must leave. Immediately! I'm officially doing the program again, back to writing down every morsel, measuring and weighing. It's working, as I've lost a couple pounds already, but more work is to be done so that my smallest pants fit again. (I haven't gained a full size, but things that fit a few months ago fit uncomfortably now, and that's the best way to judge how things are going!) I plan to go to a meeting on Thursday this week and next, and to prove to myself that I can get this back under control in just a few weeks. The thing about WW that's both good and bad is that it's time consuming; instead of just grabbing a scone at a coffee shop when I'm hungry, I need to plan ahead, prepare more food, plan menus carefully. I should be doing all of these things anyway,so I don't mind, but it is taking up some of my time. Ryan is joining me on the program, and I'm thrilled to have his company and to give him support.

- Playing with Tessa. She's so much fun these days (for the most part; today was a bit of an exception but I'm going to forget that asap!): we've been going swimming together - she can actually swim on her own about 10 feet, and can even take a breath sometimes; Ryan's taken her bike riding (has to be a sunny day to enjoy that); we've been walking the dog together; she's writing lots of letters and learning their sounds; we've been doing art projects almost daily (I set them up, she does them, only occassionally requesting my help). We have playdates, we sing songs, we read stories, she helps me to cook sometimes, and I'm amazed at how she grows and changes each day.

- Trying out a church. Ryan, Tessa and I went to the West Seattle Unitarian Universalist service last Sunday, and really enjoyed it. We're not committed to it at this point, but we will go back and keep trying it on for size. http://www.wsuu.org/ I like their world view, lack of dogma, and open-mindedness. I realize it's not for everyone, but then, not everyone's church/view is for me, either. :-)

Mixed in with all of this is the usual: trips to Target for hand soap and bandaids, last minute treks to the grocery store, getting gas for the car, sewing on a lost button, cleaning up dog hair (how does one dog have so much hair?!), walking Shep, going to the park, grabbing a latte, visits to the vet, my usual doctor's visits (SO much less than before, but still more than I wish), trying to write in my journal on occassion, occassional dates with Ryan, occassional girls' nights, paying bills, figuring out the taxes....there are many, many things to fill each day.

This weekend was almost perfect. On Saturday, the Landahl's came over for breakfast at our house, and we all feasted and the kids got to play together. When they left, we went to the YMCA, and Tessa and Ryan swam (his first time seeing her go - he could hardly believe it!) and I ran on the treadmill before joining them; we had a quiet evening at home, the three of us. On Sunday, we had a lovely day - the best in a long while. The three of us got up, went to the coffee shop (C&P Coffee Company) together, then went to WSUU. There was a lovely service about right livelihood, and then afterwards we went to lunch with the Hisatomi's. We came home, and did some chores, and then Ryan & Tessa went for a bike ride while I prepared a Sunday meal (lemon thyme roasted chicken with baby potatoes and asparagus - a new recipe that I would make again) and then the Starkey-Burdett's came over to join us. It was a wonderful mix of work and play.

And in this way, the days pass. I'll take it!

Love,
Kristina

PS Ryan's okay, but he took a spill on his bike. He has a terrible piece of road-rash on his thigh - it hurts me to look at it! He is working from home right now as it's really almost impossible for him to sit while it starts to heal, so we are incredibly grateful that his company allows him to work from home. He's got a system figured out for lying on the couch with his laptop on the coffee table. It's a surface wound, and it will heal, but he could use your good thoughts that it will heal quickly! He hopes to go for a bike ride this weekend again. :-)

Monday, March 19, 2007

Wrong size

(Note: Today's rant is not about YOUR breasts, it's about MINE. I don't have any problem with any breast sizes. Big, small, I don't care: it's being healthy that matters. Please don't tell me that you wouldn't complain if somebody made your breasts bigger. This is not about your breasts, it's about mine. This is about my dealing with my body, but isn't in any way a judgement on anybody else's body.)

Today it hit me - not all at once, as this has been building over time - that I am the wrong breast size. I find myself tearful and angry as a result.

Many women have had this experience, I'm sure, but my difference is that they didn't have 7 surgeries to get there and then decide that it was wrong.

I asked for a B/C (full B or small C) cup, and I find myself a full D. These boobs are alien to me - they feel TOO voluptuous, they rub against my arms, and they're heavy. When I roll over in bed at night, they're in the way. My shirts all pull because I wear a size small (fits me in the shoulders and the lower torso) and they're now tight across the chest. If I get a size medium shirt, then the shoulders droop.

I have a smaller than average frame (something I didn't realize about myself until I lost the weight - I guess Tessa comes by her slim body naturally!) and the smaller-than-average-frame with the bigger-than-average-boobs is just wrong. It doesn't fit the rest of me. Maybe I'd feel differently if I'd been born with it, but since they're fake it seems really, really wrong. They're much bigger than my original boobs. It's almost impossible to find bras - my size is unusual. The boobs are so wide that they go under my armpits...they don't fit on my chest.

And I'm peeved about it. All this, only to end up with a D??? I want to be an athlete; I want to run marathons! Sure, some women do it with a D, but that's because it's what they got naturally and pretty much all runners complain about big boobs. I didn't go to all this work to get something I don't want!!!

I called the surgeon today, and she said that there is probably still swelling. We'll see - I don't see how it could be swollen but she said they should shrink down. In three months, if they're still too big, I can have surgery #8 to have them reduced.

The thought of another surgery has me weeping. I don't want to do it! ENOUGH! I am tired of being sliced open, I'm tired of needles, and I'm tired of recovery.

But I don't want to be a 32D, either. :-(

It is official: I will not be done with breast surgery by my two year diagnosis anniversary. I thought that two years would be enough....it doesn't seem fair. But nobody said this would be fair.

Wrong size

(Note: Today's rant is not about YOUR breasts, it's about MINE. I don't have any problem with any breast sizes. Big, small, I don't care: it's being healthy that matters. Please don't tell me that you wouldn't complain if somebody made your breasts bigger. This is not about your breasts, it's about mine. This is about my dealing with my body, but isn't in any way a judgement on anybody else's body.)

Today it hit me - not all at once, as this has been building over time - that I am the wrong breast size. I find myself tearful and angry as a result.

Many women have had this experience, I'm sure, but my difference is that they didn't have 7 surgeries to get there and then decide that it was wrong.

I asked for a B/C (full B or small C) cup, and I find myself a full D. These boobs are alien to me - they feel TOO voluptuous, they rub against my arms, and they're heavy. When I roll over in bed at night, they're in the way. My shirts all pull because I wear a size small (fits me in the shoulders and the lower torso) and they're now tight across the chest. If I get a size medium shirt, then the shoulders droop.

And I'm peeved about it. All this, only to end up with a D??? I want to be an athlete; I want to run marathons! Sure, some women do it with a D, but that's because it's what they got naturally and pretty much all runners complain about big boobs. I didn't go to all this work to get something I don't want!!!

I called the surgeon today, and she said that there is probably still swelling. We'll see - I don't see how it could be swollen but she said they should shrink down. In three months, if they're still too big, I can have surgery #8 to have them reduced.

The thought of another surgery has me weeping. I don't want to do it! ENOUGH! I am tired of being sliced open, I'm tired of needles, and I'm tired of recovery.

But I don't want to be a 32D, either. :-(

It is official: I will not be done with breast surgery by my two year diagnosis anniversary. I thought that two years would be enough....it doesn't seem fair. But nobody said this would be fair.

Friday, March 16, 2007

15 and $9500

Today I logged in to the Warrior Women website for the 3-Day
http://www.the3day.org/seattle07/rykri
and my smile couldn't be bigger. Our team is 15 women strong and growing...and my amazing friends have raised $9500+ so far. Every day I see the numbers climb a little bit, and I think:

"When our daughters are women, breast cancer will be a thing of the past. They will not live in fear: they will live proud of the work of their mothers before them. Our daughters will keep their breasts, and their lives, because of the work we do."

Our daughters, daughter-in-laws, nieces, friends, mothers, sisters, aunts, cousins....ourselves.

Of course, there is a LOT of work to be done between now and then, but I believe we can do it. My fourteen friends - some new, some old - are working hard. Our work will make a difference!

Tuesday, March 13, 2007

"Shoulds" that I can live with

Maybe this is why my 30s are better than my 20s, despite the obvious problems...

(Written by someone else...one of those emails distributed all over the place)

1. A WOMAN SHOULD HAVE ... enough money within her control to move out and rent a place of her own even if she never wants to or needs to...

2. A WOMAN SHOULD HAVE ... something perfect to wear if the employer or date of her dreams wants to see her in an hour.

3. A WOMAN SHOULD HAVE ... a youth she's content to leave behind....

4. A WOMAN SHOULD HAVE .... a past juicy enough that she's looking forward to retelling it in her old age....

5. A WOMAN SHOULD HAVE ..... a set of screwdrivers, a cordless drill, and a black lace bra...

6. A WOMAN SHOULD HAVE .... one friend who always makes her laugh... and one who lets her cry...

7. A WOMAN SHOULD HAVE ... a good piece of furniture not previously owned by anyone else in her family...

8. A WOMAN SHOULD HAVE .... eight matching plates, wine glasses with stems, and a recipe for a meal that will make her guests feel honored...

9. A WOMAN SHOULD HAVE .... a feeling of control over her destiny...

10. EVERY WOMAN SHOULD KNOW... how to fall in love without losing herself..

11. EVERY WOMAN SHOULD KNOW... HOW TO QUIT A JOB, BREAK UP WITH A LOVER, AND CONFRONT A FRIEND WITHOUT RUINING THE FRIENDSHIP...

12. EVERY WOMAN SHOULD KNOW... when to try harder... and WHEN TO WALK AWAY...

13. EVERY WOMAN SHOULD KNOW... that she can't change the length of her calves, the width of her hips, or the nature of her parents.

14. EVERY WOMAN SHOULD KNOW... that her childhood may not have been perfect...but its over...

15. EVERY WOMAN SHOULD KNOW... what she would and wouldn't do for love or more... 16. EVERY WOMAN SHOULD KNOW... how to live alone... even if she doesn't like it...

17. EVERY WOMAN SHOULD KNOW... whom she can trust, whom she can't, and why she shouldn't take it personally..

18. EVERY WOMAN SHOULD KNOW... where to go... be it to her best friend's kitchen table... or a charming inn in the woods... when her soul needs soothing...

19. EVERY WOMAN SHOULD KNOW... what she can and can't accomplish in a day... a month...and a year...

Being healthy

Now that I'm feeling relatively good, I'm ready to work at really being healthy again. My pants are telling me that the "I deserve a scone because I'm about to have surgery/having surgery/just had surgery" attitude did not pay off, and I'm ready to work on being well again.

Time for the gym; time for Pilates (argh!); time for outdoor runs. And time, I'm afraid, to kiss the scones goodbye. It's worth it, though: Hawaii (and my bikini!) calls to me, and I am determined to enjoy my time on the beach feeling unselfconscious, kissed by the sun, admired by my husband. :-) (To Ryan's credit, he is always super kind about my weight, and always tells me that I'm beautiful....but I know the difference so I want to make sure that I EARN his admiration, not just get it because he has to. :-) )

Monday, March 12, 2007

I love survivor stories!

From the Pacific Northwest Magazine this weekend - stories of people who have survived despite the odds. If they can do it, maybe I can do it too. I'm counting on it!
http://seattletimes.nwsource.com/html/pacificnw03112007/2003608432_pacificpsurvivor11.html

Humbly asking for your help again

Dear friends and family,

I have asked for your help many times in the past two years, and you have given it to me: I lost count a long time ago about how many meals were made, how many hours Tessa was cared for, how many cards were written, how many gifts of friendship and kindness were offered and received. Every gift is marked in my heart, though, and I am more grateful than I can say. I couldn't have made it without you, and I know in my deepest heart that I have you to be thankful toward for getting me through the worst times of my life.

I am asking for your help again: please support me in The Breast Cancer 3-Day to fund Susan G. Komen for the Cure's research to end breast cancer.
http://www.the3day.org/seattle07/rykri

I am grateful to be NED (no evidence of disease); all of my scans show that the cancer is being kept at bay, and that I am healthy. Almost two years since my diagnosis, I am nearly rebuilt...Humpty Dumpty is being put back together again. It's hard to believe how much has happened to me since June 2005: two mastectomies, a node dissection, port placement, 16 rounds of chemotherapy, 33 rounds of radiation, hysterectomy/oopharectomy, and multiple reconstruction surgeries, in addition to the continuation of Femara and Herceptin (drugs designed to keep the cancer away). I lost count a long time ago about how many needles, how many scans, or how many blood tests. I keep working hard to be well, watching my diet and exercise, taking my meds, undergoing reconstruction, going to physical therapy. Cancer is hard work, but I don't mind the work as long as I stay healthy.

I feel that now, when I am healthy, my real work is ahead of me. I am asking for your support to fund the cure. My real work is to end breast cancer for everyone, now that my personal battles are (hopefully) behind me.

This year, again, I am participating in The Breast Cancer 3-Day. I will raise pledges and commit to walking 60 miles over the course of three days (September 7-9, 2007) in an effort to end breast cancer. Last year, my team of ten raised $32,000, and this year we are determined to raise even more money to fund vital research to end breast cancer. I am incredibly grateful to all of our donors from last year: we are making a difference, and I can't do it without you. I humbly ask for your support again, so that we can get steps closer to the cure this year.

I hate breast cancer. One in eight women will be diagnosed in her lifetime, and I am sick to death of it. I am surrounded by breast cancer, not just in my support groups but elsewhere. My neighbor, Mira, was diagnosed with stage IV a year after me. Another neighbor's mom - herself a very young woman - was diagnosed last year. Just last week, one of Ryan's colleagues was diagnosed. I know that many of the people on this email have been touched by breast cancer by people other than myself - sister in laws, moms, grandmas, and friends. Nobody is immune from this hateful disease, and we must stop it!I am dedicating my life's work to ending breast cancer, and I need your help. Together, we can end breast cancer...I am sure of it!I am committed to raising a mimimum of $2200.00, and I am leading a team of women who are, together, committed to raising much more: we hope to raise $60,000.00 this year. Please support me by going to the 3-Day website and making your pledge:
http://www.the3day.org/seattle07/rykri

Or, consider joining me in the walk! Join my team, Warrior Women:
http://www.the3day.org/seattle07/warriorwomen

I walk so that my beautiful daughter Tessa may live in a world without breast cancer. Will you please support me?

Kristina Surface

Thursday, March 08, 2007

Two!

I am so excited to have to boobs. Never thought I'd say those words - let alone say them on the internet - but there it is. It's one step closer to normal, and normal sounds pretty darn exhilerating these days.

Yesterday I went to the plastic surgeon, and she removed the bandages and checked everything out. Things are healing nicely (and ahead of schedule), and I was given the thumbs' up to go bra shopping and to take a shower. I'm not sure which of those two excited me more - I am sick of wearing bras with pockets and surgical bras etc, but I also hadn't taken a shower (instead sponge baths and washing my hair over the sink) since the day of surgery.

In the best news of all, I'm already gaining mobility in my left arm. I need to get in to physical therapy asap, but I can lift my elbow above my shoulder on my left side again, and that really makes me hopeful.

I'm not allowed to start running for another week, and that's okay - I'm still pretty wiped out. After yesterday's trip to the doctor and then bra shopping, I was so wiped out that I was in bed at 7pm and it felt like 3am to me. One day at a time...and each is better than the last.

My mom has helped SO much with Tessa; Tessa is with her now. I don't know how I'd have done this without her! I love you, Mom. :-)

Kristina

Tuesday, March 06, 2007

The upswing

Well, today I am feeling a lot better than yesterday; I think that I'm on the healing trend now. Hallelujah - I'm tired of being a patient, and I'm tired of lounging in bed. Daytime TV is NOT interesting, and when I'm tired/uncomfortable/in pain/groggy from meds then I don't feel up to reading much. But today, I feel like maybe I can tackle a few things, and start to behave like a more normal person.

And speaking of normal people...
Underneath this huge, awful, white cotton bra that resembles a mini straitjacket, there are two breasts. Two! They are bruised (ouch), scarred, bandaged, and swollen, but they are mine. Soon, when I hug my daughter, there will be something soft for her to lean on. I will be able to wear tank tops and strapless dresses this summer. I will run on the beach in a bathing suit, and though my scars will be visible (about 12 inches of them across my back, for starters) the first thing people think when they see me will not be "cancer."

And the ugly little port is gone, too. I should be more sentimental towards it, given how much it helped me during the last 21 months...but instead, I am just relieved that it's gone.

And mobility? Well, the judge is still out on that one. I'm really tender on the left side, and so I have a lot of work to do - time to call Adrienne to set up PT appts. I'm hopeful, though. By the the fall, I plan to work out at the gym on all the weights, upper and lower body. And I plan to take some yoga classes. The mobility is a huge issue, but I'll work on it.

It will happen. Bit by bit, it's happening. Today it's my simple goal to walk around the block...but in October it's my goal to run a marathon. My work is cut out for me!

Sunday, March 04, 2007

Reconstruction photos

NOT MINE - I have been taking pics of each step of the way but I'm not putting them on my blog, as I do have SOME boundaries left. (However, if you are breast cancer patient and read my blog, I am all too happy to send you a series of photos of my reconstruction efforts; I have truly appreciated the women who shared their results with me, as seeing such pictures gave me hope. Just send me an email if you want to see my photos.) I don't want to give my father, father-in-law, or brother a heart attack by putting pictures of my breasts where they can see them, but I'll share with those who ask to see.

Anyway...
Here is a very well done website that shows some of what I have done as well, from mastectomy to implants (and then nipples). Frankly, this person looks a lot better than I think I will, because of my radiation scars etc., but it gives an idea.
http://myselftogetheragain.org/process.htm

So is this the hardest day?

I regret to say that it's not getting easier; I thought that today I'd be feeling a bit better. I'm really, really tender, and any kind of movement makes me super sore to the point of yelping (this includes deep breaths, reaching for the TV remote, pouring myself a glass of water....LITTLE things).

I keep hoping that if I can get some sleep (hard to do at this time) I will wake up feeling refreshed and ready to take on the day. So far this hasn't come true but I know these feelings won't last forever.

I can't wait until I can go running. Right now it sounds like the ultimate challenge, and when I'm well enough to run I'll know that I'm really actually well.

Saturday, March 03, 2007

As long as I don't move..!

I feel okay, as long as I'm sitting perfectly still. Sigh. I'm to the point where I count the hours until my next pain pill, and rolling, sitting, standing, or shifting positions HURT.

This too shall pass.

So far so good

Well, I was able to sleep moderately well last night, and that is a very good thing. A good rest is a cure-all for most things, I'm finding! I was tired not only from the surgery, but also from lack of sleep the night before. Tessa had been feeling my anxiety over this procedure, I think, and woke up sobbing "Mama, Mama! Hold me!" which was just heartbreaking...and more than slightly exhausting, as she did this for at least three hours on Thursday night, finally falling asleep in my arms in our bed. My heart went out to her...but it gave me a little pity-party, too, because I, too, was tired and anxious and this didn't help.

Tessa is in a great mood today, however....I've showed her my hospital bracelet, and my bandages, and since these things are (unfortunately) quite familiar to her, I think she feels better about the situation now.

I am very, very tender right now, and can hardly move my left arm, but this should improve with time. I am up and about, but I'm forcing myself to stay in my PJs today to keep myself down. Still, I've been able to help put Frontline on the dog & cat (no more ticks - PLEASE!), to help with breakfast, and to play a bit with Tessa. Ryan is being incredibly kind and considerate (and just finished vacuuming - boy is it sexy when a man vacuums ;-) ) to me and is encouraging me to rest, but I can't just sit in bed all day, because then I REALLY feel sick!

In addition to tenderness/pain in my chest, I have a really sore throat from the breathing tube (what's the name for that thing again?). This too shall pass.

I think that Ryan & Tessa are going to the "Grossology" exhibit today or tomorrow, and Shep has put in his request for a trip to the dog park. Not bad, all things considered. It's certainly been worse, and if this is the worst of it, I'll be okay.

Many thanks and much love to my parents for watching Tessa so lovingly all day yesterday so that Ryan could care for me and so that Tessa didn't have to hang out at the hospital for hours on end.

Love,
Kristina

Friday, March 02, 2007

Surgery # 7 Completed

I'm home!

The surgery went well, and I am now home and resting. I haven't seen the results yet as they're hidden under a Goliath of a white cotton post-surgical bra, but I am hopeful. I feel okay; I definitely won't be going out dancing any time soon but I've experienced much worse and I'm hopeful for a quick recovery.

It is good to be home.

Thursday, March 01, 2007

Okay, at least this time tomorrow it will be done!

Despite my bad attitude, I'm going about the preparations for surgery. The house is sort of in order (!), the freezer is full of food, childcare is lined up for pretty much all of next week, I bought some PJs that button up in the front, I made sure that Tessa got two great playdates today and some good 1:1 Mommy & Tessa time. I took the dog to the vet (because he got a tick - yuck), I did Herceptin....it's been quite a day.

My apologies to Beth who came over for a quiet coffee date (moms) and playdate (girls) and ended being swept up in my crazy afternoon! Thank you for understanding, Beth, and for watching Tessa so I could do the emergency vet run.

I'm tired and still haven't packed a hospital bag, but that's okay. I'm going to bed - I'll pack the bag tomorrow!

xoxo
Kristina

Wednesday, February 28, 2007

bad attitude

I've got a bad attitude.

I just got off the phone with the plastic surgeon's office, and I was informed that I will not be able to drive for about a week and a half.

Wahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh.

In addition to the problems this causes with caring for Tessa (preschool, swim lessons) I'm thinking about grocery shopping, playdates, errands. I'm thinking about how on earth are the next two weeks going to look?

I am so, so, so tired of being a patient. I want to be done. I want to fast forward the hard parts. I want to feel strong again. I want to move ON!

I do a lot of visualizations to stay strong; I've been thinking a lot of playing on the beach in Hawaii with my family. In my image, Tessa and I are holding hands and running into the surf. We're laughing, my face is turned to watch hers delight with amazement. I'm wearing the itsy-bitsy bikini that I bought, feeling good about myself, but not thinking of my body at all, jsut thinking of the moment....of Tessa's laughter, the warm water, the sun on our skin, the sand under our toes, the delight in Tessa's eyes, the feeling of her small hand, so trusting, in mine. Of Ryan watching us, and smiling until his eyes twinkle, happy. In that moment, the surgery will be behind me, not looming over me as it is now.

But even the vision is not helping me today! Today I'm sad and scared and resentful. Harumph.

Countdown to surgery

My new survivor friend, Maria, in writing about her double mastectomy, said, "It's like I have been erased." Her words took my breath away.

Yes, that's what it's like. Looking down on my chest, and seeing that flat line, really is like being erased. It made me feel small, insignificant. Unsure.

On Friday, I will get one step further to filling in the painting that is me; instead of blank spots on my chest (like after mastectomy) or pencil drawings of general shapes (like now, partially reconstructed with placeholders) we will begin to paint color and form. It is very symbolic to me in my journey that I get breasts back, and it is important to me to restore myself to some semblance of normal.

Today at the gym, I saw the looks. Confusion, then sadness or kindness or both, when women in the showers saw my deformed chest. I hope that soon it will not be quite so obvious, to them or to me.

On Monday, Tessa and Jessie and I were together, and the girls wanted me to read them a story. I sat on the couch, a beautiful little girl on either side of me, and we pulled out the first book. I tried to put my arms around each girl so that she could lean on me as we read, and it was impossible. My left arm doesn't lift that high, and my expanded chest is simply too rock hard and painful to allow a snuggle. In that moment, when I felt so filled with joy at the simple pleasure of reading with inquisitive, playful, loving children...I became filled with anger that I can't even cuddle, that I can't move the way a normal person can move.

I can't lift my arm to do the most basic of things. Driving is painful when I need to do shoulder checks, when I need to make a sharp turn, or when I need to pass a snack or something to Tessa in the back seat. Taking things out of the top cupboards is an act of will and balancing. Dispensing shampoo from the bottle, hanging at eye level in the shower, means standing on my tiptoes to raise my whole body where my arm will not go, so that I can catch the pumped shampoo. Walking with Tessa means gritting my teeth when she wants to hold my hand and hop and skip because it hurts my body. I refuse to NOT hold her hand - she is my daughter! - but I am so, so tired of the aches it causes.

At night, I awaken many times because of the discomfort or pain of rolling over; I can't get comfortable, and so I'm always tired.

I am tired of these minor, yet many, compromises. I want to just be able to move freely. I don't need to be able to lift weights, or to hang from a bar, or to do a lap of butterfly...I just want to stop hurting from doing normal, everyday actions. Now, I do some of these things, but it hurts, and it tires me, and it pushes me to the edge. But what else would I do - not drive? Of course not. I push on through.

Surgery is one step towards fixing that. Hopefully removing the expander will remove much of the discomfort; hopefully they'll be able to remove scar tissue without further damaging anything and I will be able to lift my arm again. For these reasons, I am looking forward to surgery. BRING IT ON!

But I'm scared, too. This is my 7th surgery since diagnosis. I know what it feels like to recover. The anesthesia makes me feel lousy, the pain meds make me feel lousy, the incisions make me feel lousy. Drugs to sleep, drugs to kill pain...drugs that numb my mind and make me an incompetent mother for the time-being. I know all too well what that feels like, and I'm bitterly resentful of it. I'm resentful that I will not be able to hug Tessa, or to let her hop along beside me as she holds my hand, while I heal. That I will not be able to make healthy meals for us, that I will not be able to do much.

This too shall pass. I hope it passes quickly, because I can't help but dread it. It IS worth it to me in the end, but it is still a terrible burden.

If this surgery goes perfectly, there will be one more surgery (nipples) and then tattoos (aereolas). If things aren't perfect (the implant on the left could slip like the one on the right, or they may be different sizes, or pointing in different directions....the radiated side may perform differently than the non-radiated side, even if we do the same procedures) then we'll need another corrective surgery before nipples.

I pray that I'm done with all surgery by my two year diagnosis anniversary, June 1. Two years seems like ENOUGH. I'll still be doing Herceptin through September, and Femara through 2011, but isn't two years of surgery ENOUGH?!

In a month, I will be able to hold Tessa tight to my chest, without hurting. My port will be gone (part of this surgery) and her head won't bonk it, making me yelp. I should be able to sit with a child on either side of me, snuggled up on the couch to read a story. Maybe I'll even be able to push Tessa on the swings, yelling "Underdog!" and hearing her laugh as I push her ever higher, running beneath her as she soars through the air.

I can do this. I've done worse. But with each successive surgery, it gets a little harder. I know what I'm getting into.

Friday, February 23, 2007

3-Day excitement; off to Orcas

Last night's 3-Day party left me even more inspired. I think that a number of friends who were undecided before the event actually decided to walk after hearing more about it, and I'm THRILLED by this news. On an altruistic note, I'm excited about the commitment to bringing in $2200 per walker towards the cause; on a selfish note, I'm just looking forward to walking and training with these wonderful women. Girls, we are going to have some serious FUN!

Today we're rushing around like mad getting ready to go to Orcas with Marisa and Max. Our family loves spending time with Marisa, and Shep is particularily excited to get a doggy playdate that lasts all weekend. Marisa's cabin is a little slice of heaven on earth, and we've been there so many times that it feels a bit like home to us...we love it. The sun is shining, and we're ready to go!

Tessa has a cough, but I am crossing my fingers that we're through the worst of it and it doesn't put a damper on her weekend (or ours!).

Okay, off to throw clothes in a bag and hit the road. Have a great weekend!
Love,
Kristina

Wednesday, February 21, 2007

Excitement

I am starting to get really, really excited for the 3-Day. We are building a team of the most amazing people, and I am so honored to walk with these women. The team will be a mix of people returning from last year ("Team Kristina" members), friends who couldn't walk last year but are up for the challenge this year, friends of some of the other team members, and new survivor friends.

Right now, it looks like we will have perhaps five survivors on the team. When I look in these women's eyes, I see myself. They remind me why we're doing this.

We are going to kick some serious cancer a$$. I know that I'll go through the "how on earth will we ever do this" phase, but right now I'm in the "hmmm maybe more than 20 people will walk, and maybe we'll raise more than $60K this year...maybe I should shoot for $100K!" phase.

One day at a time. I'm just so delighted that so many friends have expressed an interest in doing this with me. I can't wait for the little party tomorrow. :-)

Kristina

This week

Well, this week is going on at usual speed. Minor updates:

- Tessa has a cold. I've kept her from all kid-activities and the poor dear is dying to go hang out with her girlfriends...like mother like daughter on that one! Anyway, she's okay, but on Sunday she was up half of the night crying and coughing; nothing would soothe her. She's doing fine through the night now and it's settled into a "normal" cold; she is just coughing and sniffling during the day. No swimming lessons today because of that, and that makes her sad.

- I have committed to doing "I am the cure" with Komen. It was right for me. Twenty years from now, I'll look back at this time and know that I made a difference. The next six months will probably be crazy, but hey, it's me...so if it wasn't this, it would be something else! I know I'm spending my time on something valuable.

- Last night I went to a survivor's meeting at Gilda's Club, and I got a lot out of it. When I went over a year ago I just couldn't do it...other women's stories overwhelmed me. Now, I'm in a pretty good place, and hearing others actually helps me to deal with my own thoughts on recurrence etc. (Just so you know, that is ALWAYS in my head. I hear from other survivors that it will never go away. It's not a matter of having a good attitude, it's a matter of dealing with the facts, and being all too aware that recurrence is a regular part of this path for many women. I know several women in recurrence...it happens. The trick is to accept this possibility and not allow it to overwhelm me, and that's what talking about it does for me.) The women in the group are bright, articulate, brave, and strong, even when they are afraid. I will definitely go back. They meet monthly.

Tonight is my grandmother's 84th birthday party, and I'm looking forward to attending and celebrating her life with her and the rest of the family. Tomorrow is my wine, cheese and chocolate party (with the purpose of getting girlfriend time and talking about the 3-Day) and I'm looking forward to that quite a bit. But on that note...I'd better start cleaning my house. Time to run!

Love,
Kristina

Monday, February 19, 2007

Okay maybe I should still do Herceptin?!

I'm confused...obviously!

I spoke to our insurance company today. Apparently they are only covering 90% of all Herceptin fees since July (when we switched companies) and the bill reflects the amount that is out of pocket until we hit our $2200 annual deductable.

This means that we owe $2200 from last year and haven't received that bill. We will also owe $2200 this year because I've continued Herceptin, but also because I'm slated for 2-3 more surgeries, and that will easily make me hit my out of pocket. Even if I quit Herceptin, I'd hit the $2200 deductable (which, by the way, I have no idea how we're going to pay) this year, and quitting Herceptin now wouldn't change that.

So, the money isn't part of the equation. It is a royal pain, but it's not part of the decision making process for Herceptin.

I now suspect that I will continue Herceptin through September, as planned. "Leave no stone unturned" is my motto. I know too many people dealing with recurrances right now to forget the message.

Yes, I know it sounds like I'm indecisive...but it's my blog, and I'm thinking it through...just that I have an audience!

Kristina

Okay maybe I should still do Herceptin?!

Saturday, February 17, 2007

Time to end Herceptin?

In addition to my falling MUGA, I got another nasty surprise last week: a bill for $800 for my last Herceptin treatment. It seems that my insurance may no longer pay for Herceptin; I need to call them on Monday to figure it out. The insurance statement was for $19,000 (which, you may be surprised to hear, doesn't mean much to me - I get statements like this all the time, at least once a month...I have accrued hundreds of thousands of dollars worth of treatment by now) and "only" $800 wasn't covered, but since it was covered at 100% before I wonder if my insurance company will no longer support my second year of Herceptin treatment.

Sigh. We can not afford $800 (or more!) every 3 weeks until September...not even close.

I am starting to feel like the universe is telling me that I've had enough Herceptin. 12 months is standard, and I've had 17 months. I hate to avoid any possible cures, but since this one is a big unknown (the study on one year vs two isn't finished) I just can't afford to cough up that kind of cash.

In better news, Genentech has approved my story and submitted it for FDA approval. I hope to get called to a speaking engagment soon.

And in other news, the local Komen office has asked me to chair a major new initiative that is slated to be a part of Race for the Cure. It would be a major time commitment for me, and involve a lot of responsibility. I am currently debating whether I can be a great mom and stay sane AND do the initiative. Only time will tell, and I'm going to go through a logical process (mapping out what the commitment would look like) to make the decision, but I am hoping and praying that I can make it work. It is an important initiative, proven successful in other markets, and I would like to be the one to make it successful in Seattle. It would be a way to bring powerful messages to thousands of women....and in doing so, it might save women's lives. I would like to tie my name to that kind of thing; I'd be proud to finish such an accomplishment. But I am also aware of how spread thin I am right now....so I need to think about it further. If you're praying for me, please pray that I will do the right thing for myself, for the cure, and for my family.

Love,
Kristina

Thursday, February 15, 2007

CA 27.29 report; MUGA results

I forgot to report earlier:

CA 27.29 is a tumor marker in the blood that is elevated in the presence of breast cancer; when I was diagnosed it was at a 44 (40 and under is normal), and since my original surgery I've hovered around 17. It's currently (blood work last week) at 8. Good news! The marker is notoriously unreliable but trends can be important and I like this trend.

My MUGA (heart test) has dropped, however. Normal is above 50, and I've been at 64 since starting treatment. In the past three months my score dropped to 56, which is still in the normal range but a significant drop. I'll get retested in another 3 months. If my levels continue to drop I would need to consider discontinuing Herceptin, and I'm hoping that won't be the case, as I'm betting a lot on that drug and want to complete two years of it. However, the risk of low MUGA scores are heart attack and congestive heart failure, and I won't risk that if the numbers fall too far.

I guess I'll update in May!

More juggling

I haven't been on much because I've been too busy! Life continues at the same breakneck pace.

I have turned in my Genentech story and it's been approved at the first level; it's off to FDA approval next (because I will be speaking about a pharmaceutical, I need FDA approval of what I'm going to say). I have also turned in 20 pages of content for the Komen Race for the Cure website - the written content came from me (or I stole it from other Komen docs and fixed it up). I've got Tessa's friend Jessie here for 3 nights as her parents are in San Fran; Jessie is a fabulous kid and a joy to have around, but still, it's kept me busy. Ryan and I have been doing some yard projects, mostly maintenance we'd been putting off. And then there's the usual preschool, swimming lessons (Tessa has improved dramatically!), birthday parties (two this weekend), and the like. I'm struggling to lose two pounds - nothing to "worry" about but I'm also aware that pounds creep on one or two at a time, and so I have to get rid of them one or two at a time. Exercise is sporadic at best; I need to better learn how to fit it in. I'm fully expanded now, and awaiting surgery March 2 for the new implant and corrections on the other side.

February 22 - 3-Day Kick-off party at my house (Interested? Email me and I'll invite you!)March 2 - surgery
April 15 - Whidbey Island Half Marathon
April 19-29 Hawaii!
May 12 - Giant Yardsale Fundraiser
June 16 - Race for the Cure

It's going to be a busy spring!

Additionally, I've been asked by Komen to head up a new program called "I am the Cure" for the Race for the Cure. It's a fabulous opportunity...I just need to see if I have time to do it. I'm still trying to figure out how much work Genentech will offer, and I need to prioritize that because there is a financial stipend for Genentech but not Komen. And I haven't forgotten my goals as a stay at home mom, either. I think today we're going to go to the aquarium. :-)

See, I really am busy!

Now, off to take the girls and take the dog for a walk...

Love,
Kristina

Friday, February 02, 2007

Signing up for the 3-Day and Save the date!

If you wish to look at joining team Warrior Women, please check out:
http://www.the3day.org/seattle07/warriorwomen

And please save the date: Saturday, May 12 is the giant yard-sale fundraiser. More details to follow!

Tuesday, January 30, 2007

Juggling

I have a lot of balls up in the air right now: Komen, Genentech, motherhood, fitness/running/marathon, weight, Hawaii, surgery & follow up stuff for treatment, co-op preschool, friends, marriage, housework, and even the occassional need to sit down and take a breath.

Some days I manage this better than others. The last couple of days I've felt good about my progress: I have cleaned out our office -something that has been bothering me for A YEAR!, submitted my Genentech work and expense report, done a bunch of work for Komen, followed up on various commitments, stayed on plan for Weight Watchers (it's a lifestyle, not a diet....which means that to stay "lifetime" I have to do it for the rest of my life....which I had not been doing, so I gained a couple of pounds), etc. I am nowhere near caught up but I'm making progress, and progress feels GOOD!

Right now, Tessa is playing dress-up with Anna, the sun is shining, Shep is happy because I took him for a walk...and the world looks good. :-)

Juggle, juggle, juggle. I drop balls, but I'm trying to find the right rythem...

Kristina

Monday, January 29, 2007

A Mommy Moment

Yesterday, Tessa and I took a shower together. Usually I enjoy showers to myself, but Tessa had dipped her hair into my latte (grrr!) and both of us were in need of a quick scrub, so we popped in together to save time, instead of giving Tessa a full bath, which is as much playtime as anything else.

While in the shower, we were singing to pass the time. (Isn't that what people do in showers?) I started singing "So Far Away" by Carole King - I think I'd heard it on the radio a few minutes before getting into the shower.

I stood there, water cascading over us, Tessa in my arms, her head on my shoulder, as she enjoyed the warmth, and I sang, "You're just time away; long ago I reached for you and there you stood; holding you again would only do me good," and I came to the realization that this was a moment to never forget.

One day, perhaps twenty years from now, my daughter will live on her own, and would think that it was the height of weirdness to simply relax her naked body on mine to enjoy a shower together (and, at 24, I agree, that would be pretty weird...even assuming I was strong enough to lift her!). I realized that one day, I'd look back at the simple pleasures of being the mother of a young child, and I would yearn for the closeness of my sweet girl. One day, she'll be far away, and I will yearn for her, and I will remember the moment when all that mattered was the warm water and the relaxation of being together.

The moment passed; we quickly scrubbed our hair clean, got ready, and headed out into the day (and the beautiful sunshine - hurrah!). But I hope that I can carry that moment in my heart forever, and that I do remember it. For a moment in time, we had everything we needed, and all was well with the world.

Lovely.

I wish you such moments of living in the present, too, and I hope that I can remember mine more often.

Love,
Kristina

Friday, January 26, 2007

The 3-Day in 2007

I have offically signed up for The Breast Cancer 3-Day in Seattle, September 7-9, 2007. I am excited to begin my work on it, and hope that those who sponsored me last year will consider doing so again.

This year, the team is re-named Warrior Women. I have long imagined that my friends and family were an army supporting me as I fought the beast of breast cancer; my middle name, Louise, also means warrior woman. In short, the name just struck me as "right" and I hope that others like it, too. I loved being a part of Team Kristina last year, but this year, I wanted our name to be more inclusive of others, and not just about me. I'm hoping to have other survivors join the team, as well.

I also love the name because it fits with The Susan G. Komen Breast Cancer Foundation's new advertising campaign, aimed at young women:

When we get our hands on breast cancer, we're going to punch it, strangle it, kick it, spit on it, choke it and pummel it until it's good and dead. (Not just horror movie dead, but really, really dead.) And then we're going to tie a pink ribbon on it."

By the way, Komen is changing it's name to "Susan G. Komen for the Cure," and this is part of their re-branding. They're getting hip with the times!)

That sentiment makes me very, very happy. Pink is pretty, and so are we, but we are also fighters, and breast cancer is going DOWN! (
Interested in joining my team? I would love to have you. We will have a bigger team than last year, and we're going to have a wonderful time. Here's a link for joining us:
Join team Warrior Women at the 3-Day in 2007
If you are so inclined, you can also click on my name and make a donation. I can't wait to get started with this!

With love,
Kristina

Wednesday, January 24, 2007

All fired up!

This morning I attended the Susan G. Komen Breast Cancer Foundation (now renamed Susan G. Komen for the Cure) Annual Meeting. It was fabulous to be around others committed to ending breast cancer, but here's the most exciting part:

One of the presenters was Dr. Dwight Randal, a truly brilliant guy who is on Komen's board. He talked about the work that one of his colleagues is doing to train the body to attack cancer, because the immune system doesn't work for cancer because the body sees the cancer as "self" and treats cancerous cells as "self" instead of as a foriegn body.

Well, to make a long story short, this doctor has a theory that if cells are retrained to see cancer as a foriegn body, the immune system will attack them.

The first patient started the first phase of the trial six weeks ago. She's dubbed "patient 001." Well, 001 is a late stage IV patient who has tried multiple therapies, including multiple cutting edge therapies, but nothing has worked, and the mass inside her chest is so large that scans can't see through it. The way Dr. Randal talked about it, she was lying on her deathbed. So, she tried this very new, very experimental therapy.

The result? Three weeks later, she was home. Her tumor shrunk 92% in that time. 92%!!!!!! I have never met this woman, but I could have cried from happiness with that number. Now it's six weeks later, and she's doing well; she'll have anther set of scans soon, but she feels good and she's at home.

Is this the cure? Or at least the cure for some part of the disease? We're a long way from knowing that. Patient 002 is starting the trial today, perhaps as I write this. Will her results be as good? Only time will tell. Here's what I know, though: good works are happening. We will find a cure, this one or another one. And Komen for the Cure is funding this kind of research. I am proud to affilliate myself with them, and proud to spend my time for them.

Kristina

Tuesday, January 23, 2007

Four birthdays!




Tessa's Birth Day






Happy Birthday, Tessa!

Today my tiny baby girl is four years old. I can hardly believe it! I thought I'd walk down memory lane by posting the story of her birth here...and of course I have to include pictures.

Tessa Katherine, I adore you. The best thing in my life is being your mommy. Happy birthday, sweetheart!
-------------------
Tessa Katherine Surface’s Birth Story

The week leading up to the birth….
On Wednesday, January 15th, I went to the hospital for my standard weekly prenatal checkup, expecting to hear the usual things about my pregnancy – usual, in this case, being “everything’s fine!” However, instead I received the distressing news that my blood pressure was too high at 140/90, and that because I’d gained four pounds in the previous week and was retaining water, AND because I was now showing trace amounts of protein in my urine, I was diagnosed with PIH (Pregnancy Induced Hypertension, a.k.a. toxemia or pre-eclampsia). With this unfortunate diagnosis, I was sent home to immediate bed rest until the baby was to be delivered. What a shock! As always, but more than ever, I was extremely grateful that Ryan was with me to hold my hand and to take care of me. The good news was that I was 2 centimeters dilated, with 70% effacement, and that TessaBenjamin was in the –1 position, and those things meant that my Bishop score was over 10, and so the doctor thought that we were likely to deliver “soon,” so it was my hope that I’d go into labor on my own and not need to be on bed rest for long.

Doctor Hutchison made us an appointment for Triage at Swedish for that Saturday, just to make sure that things were okay, and we were told to have our bags packed “just in case.” We rescheduled our Wednesday appointment the next week to Tuesday, and Dr. H told us as well that if we hadn’t had the baby already, we would be induced on Thursday the 23rd. All of this was quite a shock – the pregnancy had progressed so wonderfully normally until then – but of course we were willing to go along with our doctor’s advice, since we understood the seriousness of PIH.

That Friday, I started seeing spots, and so when I called the doctor’s office they told me to come in right away. I asked if Ryan could come home to get me, and they told me that he should just meet me at the office (which, of course, he did). Fortunately, the appointment was relatively uneventful….although they told me that it looked like I was in early labor! The non-stress test showed that our baby’s heartbeat was looking good, and it also showed that I was having mild contractions every 2.5 to 3 minutes. I had felt contractions like these for a couple of weeks, though, so I didn’t believe for a minute that I was actually in labor. It turns out I was right!

On Saturday, we went to triage as scheduled, and the contractions had stopped, my blood pressure was relatively stable (still high but not at a dangerous level), and so they sent us home – without our baby, still pregnant, and still on bed rest.

On Tuesday, we went to the doctor again, and found that we were 3cm dilated and 75-80% effaced. Finally, we asked the nitty-gritty about delivery with PIH. The news was scarier than we’d expected. We were told that I would probably have to receive magnesium sulfate in an IV to prevent seizures and stroke during labor – and the words “seizure” and “stroke” were terrifying. We were also told that it was very likely that I would need to have an epidural, as one of the side effects of an epidural is lowered blood pressure, and also because Pitocen induced labors are often more painful than naturally progressing labors. This was scary to me, because my reading told me that the epidural does make it into the baby’s system, and that babies can often be slower as a result of it in the first few weeks, and this often causes problems with breast feeding. Less scary, but also disappointing, was the fact that I would still be officially on bed rest, so I wouldn’t be allowed to walk around, to labor in a squatting position, or to have the mobility that I’d hoped for. Since those were some of the primary ways I’d intended to manage my pain, I was nervous that they were being taken away from me. However, we were determined to do whatever it took to have a happy, healthy baby, and the excitement that we felt over our baby’s arrival was greater even than our fears.

On Wednesday night, Ryan and I watched “our” movie, which is When Harry Met Sally. (It’s our movie because our relationship parallels theirs in many ways – friends for a long time, then “more than friends,” then struggling to even remain friends….and then true love!) We snuggled on the couch downstairs and talked with each other….it was a great way to spend our last night as a couple before becoming a family.

At about 2am, I was still wide awake and thinking about the events that were sure to follow. I whispered “Are you awake?” and Ryan replied that he was, too. It was impossible to sleep with such an exciting and scary event right around the corner.

Birth Day: January 23, 2003
The hospital called us at 7:30am promptly to let us know that we should come in at 8:30am. This was it – for real! We made a few phone calls to let people (Mom & Dad S., Mom & Dad D., Susan, and Libby) know that the show was on, and then we went to the hospital. When we got to the hospital, we were assigned to a room, and to our nurse, Merllie (who was fabulous!). Merllie hooked us up to monitors and got us settled, and she began a Pitocen drip at about 9:20am. The contractions were present already when she started the drip, and they got stronger with the Pitocen, but I knew that they must have to get a lot stronger to really have an impact, because they didn’t hurt much at all and I was still able to talk through them. When Susan and Libby showed up a while later, Ryan and I were reading from a book (“Notes from an Italian Garden,” which was a gift from Keith & Noel) and feeling relaxed, although excited. My blood pressure looked good, and they decided that they didn’t need to start any magnesium sulfate – what a relief! I was still stuck in bed for the most part, but I was allowed to use the birth ball and the tub, so that was nice.

At about 1:10, the doctor came and performed AROM (Artificial Rupture of Membranes – she broke my bag of waters). It’s at that point that the contractions REALLY started. I found that if I closed my eyes and just blocked out everything else, it was much easier for me to deal with the contractions. I tried several other methods of dealing with them, too – including imagery (I imagined that I was a dolphin, riding up the crest of a wave) and breathing techniques (at first, slow, deep breaths were good, but after a while I used a combination of short breaths followed by a long breath in a he he he he ho pattern). The best thing of all, though, was Ryan – he kept me focused and held my hand, and he did the breathing with me. Susan and Libby hung out in the back, offering Ryan support (which he was extremely grateful for). At first, in between contractions I was able to chat and visit with them – the contractions were intense, but when they were over, they were OVER! I have to admit, I’m proud of the way that I handled the pain. I think that by giving myself positive messages, and by employing the breathing techniques and visualization techniques, I was very successful at managing my pain and my fear. By about 3pm, though, the contractions were so intense that in between I needed to just rest and couldn’t talk much, and sometimes I didn’t even open my eyes between them. I also used the birth ball, with Ryan standing behind me to support me and to keep me breathing. (We have a picture of us in this position.)

At about 3pm, I asked to get into the tub. For reasons I still don’t understand, they filled the tub, drained it, then filled it again! Since the tub was marked “sanitized” I didn’t understand that at all…and it was highly irritating because at that point I felt that I needed a new method of pain management and waiting was incredibly difficult. Anyway, I didn’t get into the tub until about 3:30pm. Just prior to getting into the tub, I was examined and found to be between 5-6cm, and so I thought I probably had a long time to wait before TessaBenjamin would make an appearance.

The tub was bliss! The warm water felt so incredibly good, and I felt that the pressure of the contractions was cut in half by the weightlessness that the deep water offered. Ryan sat behind me, in his swim trunks, hands on my shoulders, and I thought that I could hang out like that for a few hours without complaint. How quickly things change, though! I had about two contractions, and on the third contraction I felt an unbelievable urge to push. I held back because I knew that I wasn’t ready and I didn’t want to bruise my cervix by pushing too soon, but I yelped to the nurse to tell me what to do. They got me out of the tub (and at this point, I should add, modesty had flown OUT the window! I was stark naked, and I didn’t care – all I cared about were the contractions), Ryan dried me off, and I staggered into bed. I was scared at that point – the contractions had been building steadily all afternoon but suddenly at this point they went off the charts for pain, and I hadn’t had time to catch up to that feeling, and I wasn’t managing my pain well.

The contractions seemed to me like they were coming one right on top of the next, and to top it all off I got cold, and then I started shaking (particularly in my legs). The nurse tried to examine me, and the intensity of the contraction made the examination feel absolutely horrid. However, it was worth the exam – she informed me that the reason I felt a need to push was that I had already gone through transition, I was 9-10 cm, and fully ready to push! This was exciting news, but also a bit shocking. Mostly, I felt relieved to hear it because I knew that I couldn’t handle hours more of the pain at that level, and knowing that I was fully dilated made me understand that the reason it had gotten so much more intense was because I was making incredible progress.

At this point, lying on my back started to be painful beyond words. My body BEGGED to be in a standing position, or squatting, and I cried out to the staff to let me get off my back, but they wouldn’t allow it. They had me go on my side, or on my back, and I remember whimpering and moaning because the pain was so intense. At that point I remember asking the nurse Mary (who was also in the room) how long the pushing phase was likely to last, and she said, “Oh, up to three hours.” At this, I wanted to cry, because I genuinely felt that I simply could not last three more hours at that level of intensity – it wasn’t just that I was tired (I actually felt like I had energy still) it was that my body seemed to have a mind of its own and the pain was absolutely unmanageable and made it so that I felt like I couldn’t control my body. She told me that pushing would probably feel like a relief, though, and less painful, which was good news.

Unfortunately, pushing was NOT less painful for me. I felt like I was being scraped with a cheese grater all down the birth canal, and it was very difficult for me to push because my natural instinct in response to the pain was to hold back and fight pushing. I remember holding on to the bedrails and panting and moving my head from side to side, desperate to find some relief and anxious to feel the relief that pushing was supposed to bring. At one point, I heard myself making a lot of noise and I actually had enough presence of mind to open my eyes and say, “Oh my God, I’m a moaner!” which cracked the room up. Soon after that, Ryan said, “If you want to call me bad names and yell at me that’s okay…” and I remember looking at him and saying, “What? I’m not mad at you – I love you!” I think he was relieved but still not sure I wasn’t ready to kill him for putting me in that situation….but I have to say that I never, not for one second, lost focus that this was something I wanted, and I never felt anything but closeness toward Ryan during the labor.

I had written into my birth plan that I did not want an episiotomy, and Dr. Hutchison was marvelous about working with me on that point. She took mineral oil and massaged me, working my body to help ease the baby out. Libby saw this and commented afterwards what an incredible professional Dr. H is – and I have to agree. Interestingly, though, I did get one cut – my hymen! Dr. H said that mine was particularly tough and stubborn, and so it was impeding the baby’s progress. How incredibly odd – I thought that the hymen was usually broken when a girl lost her virginity….and I assure you that this was NOT a virgin birth!

Despite these small moments of levity, pushing was horrific work, and at one point I panted “I can’t!” I didn’t mean “I won’t….” I really meant that I just didn’t know how to summon the strength to keep going. At that point, Dr. Hutchison told me to reach down and touch my baby. I will never forget the silky soft feeling of her hair as she crowned – it was like I believed, for the first time, that it was REAL and that I was really going to have a baby! Her head felt so soft, and I could feel the silken hair, and suddenly everything became much more tangible, and I was able to give a couple of good pushes.

Despite my concentration on my own body, at one point I could feel the atmosphere in the room change, and I heard someone say that the baby’s heartbeat was at or below 80 beats per minute. I knew that a healthy heartbeat would be over 120, and so this was quite frightening. Suddenly, everything started happening at once, and Dr. H order forceps and vacuum extractors. I wasn’t keen on the idea of having my baby forcibly removed from me (and I knew that these tools are tough on babies and often really tear moms, as well) but my fear of the tools was doubled by the fact that I knew that Dr. H’s request for them stemmed from an immediate, severe problem. Dr. H spoke to me very clearly, saying, “Kristina, look me in the eye. Look at me! We need to get this baby out now. Do you understand me?” I did understand, all too well – I knew that my baby (and possibly me, because of the blood pressure issues) was in trouble and that thought was terrifying. However, it gave me strength to do what was needed – and I pushed like I’d never pushed before. The pain was hideous, and when I tore I felt it happen. I felt something protruding inside me, and I remember asking “Is that its nose?!” because I couldn’t figure out why I felt so scraped from the roundness of a head. Well, almost as soon as I could ask, the head popped out – and following it, almost in the same motion, the hand popped out, too, like it was waving! I didn’t see this, but I certainly felt it (and I must say, I think it was the most painful part of the whole thing – I’m informed that it was incredibly cool to witness, but it’s the part of the birth I would change!). I heard Ryan exclaiming about the head and hand, and before I knew it the body came out all at once, at 4:08pm

I really wanted Ryan to be the one to tell me if it was a boy or a girl, and everyone in the room knew that they were to keep mum on the gender until Ryan could tell me. Soooo, no one said anything, and I looked right at Ryan immediately after I felt the baby exit my body, and I saw him choke out “Tessa!” in a barely audible voice. At that point, he burst into tears of relief and joy – seeing his daughter being born was pretty emotional, and fearing for both of our lives at the end only compounded that. The funny thing was, nobody else heard Ryan say it but me, and so they all said, “Tell her! Tell her!” and he had to repeat himself, but I’d already heard.

Tessa was quickly suctioned and placed on my chest. She was so incredibly perfect – her wide eyes looked startled at her introduction to the world, and she gave a beautiful, strong cry to let us know that she was okay. We held her tiny, perfect hands and snuggled her close, so grateful that she had arrived. And….now I can confess it. I would have been happy with a boy, and I certainly would have loved Benjamin – but in my heart of hearts, I always wanted a girl. I was so incredibly delighted that my precious child was a girl that it was like a present – and I was just stunned with complete delight. This joy was heightened by the fact that Ryan had always known that we would have a Tessa – and that made me feel like he had a special connection to his daughter right from the beginning.

After a moment of snuggling and adoration, the nurses took Tessa to clean her up and make sure that she was okay, and Dr. Hutchison started to stitch me up. (I’m no martyr, and I had written into my birth plan that I DID want drugs if I had to be stitched – thank goodness! Dr. H told me that I had about 20 stitches, and even with the drugs I felt quite a bit. After childbirth, I could handle most things, but even so it wasn’t particularly pleasant and I just kept waiting for it to end.) As I was being stitched, proud daddy Ryan snuggled with his newly swaddled baby girl, and then Libby and Susan got to hold her. It wasn’t until then that I realized that Ryan was still in his swim trunks – everything happened so quickly after I got out of the tub that there was absolutely no time for him to do more than to put on a t-shirt! Ryan loves to tell the story that when Tessa was born, he was wearing damp swim trunks and had bare feet….but he didn’t mind.

When I was stitched, Tessa was handed back to me, and she began nursing like a champ. Looking down at my breast, seeing that little face intently focused on her dinner, was – and still is – pretty amazing. Her latch was strong, and she was so alert – it was really love at first sight, but the love grows exponentially.

All in all, my labor and birthing experience was incredibly positive. Ryan was the most incredible labor coach, and I absolutely felt the love and support of not only him but also of the two dear friends who were there to support us (Susan and Libby). I feel grateful that I was able to have the birth without the use of magnesium sulfate, and that my body was cooperative. Most of all, I'm grateful that Tessa was born healthy (Apgars of 9 and 9), and that our family feels so beautifully complete. Really, I may be the luckiest woman alive!

Monday, January 22, 2007

Leaving YSC

I have spent a lot of my time since finding the lump on the YSC (Young Survival Coalition) website, chatting on a bulletin board with other young women with breast cancer.

Today, it occurred to me that I must not go back.

Part of it is because there is usually not much that is new - I'm one of the "old" girls on it, and I've already been through chemo etc so I don't have questions about that any more. Part of it is because it scares me to see "friends" progress to stage four (yes, another one today). Part of it is because it keeps me in Cancerland, and I'm trying to get the next plane out of Cancerland. Part of it is that I'm too busy with the work I'm doing on breast cancer causes, instead of working on my own breast cancer beast.

So, I've deleted it from my favorites list. No lurking, nothing. It's time to channel that energy into my work for Komen and Genentech.

I hope that this is a good new phase.